eprintid: 10144849
rev_number: 7
eprint_status: archive
userid: 699
dir: disk0/10/14/48/49
datestamp: 2022-03-10 10:29:36
lastmod: 2022-03-10 10:29:36
status_changed: 2022-03-10 10:29:36
type: article
metadata_visibility: show
sword_depositor: 699
creators_name: Gilchrist, Katie
creators_name: Vindrola-Padros, Cecilia
title: Advocating for carers: a qualitative study exploring the needs of UK carers of patients with an acoustic neuroma
ispublished: inpress
divisions: C10
divisions: G88
divisions: B02
divisions: UCL
divisions: D16
keywords: acoustic neuroma; carer needs; informal carers; non-malignant brain tumour
note: This article is distributed under the terms of the Creative Commons Attribution 4.0
license (http://creativecommons.org/licenses/cc-by/4.0/) which permits adaptation,
alteration, reproduction and distribution without further permission provided the
original work is attributed. The derivative works do not need to be licensed on the same terms.
abstract: Research on the impact of caring for patients with an acoustic neuroma is scarce. Findings from 12 interviews with primary carers of this patient population highlight six key themes: life disruption, support, well-being, the carer role, lessons learned and the impact of COVID-19. Carers need more practical information and emotional support, starting from the diagnosis stage through to recovery. Recommendations include routine carer assessments, early signposting to auxiliary services and information materials about recovery. This study contributes to the UK literature gap of this under-studied population and demonstrates the importance of carer assessments, as set out in the Carers Act 2014.
date: 2022
date_type: published
publisher: Bristol University Press
official_url: https://doi.org/10.1332/239788221X16432145729095
oa_status: green
full_text_type: pub
language: eng
primo: open
primo_central: open_green
verified: verified_manual
elements_id: 1944088
doi: 10.1332/239788221x16432145729095
lyricists_name: Vindrola, Cecilia
lyricists_id: CVIND44
actors_name: Vindrola, Cecilia
actors_id: CVIND44
actors_role: owner
full_text_status: public
publication: International Journal of Care and Caring
citation:        Gilchrist, Katie;    Vindrola-Padros, Cecilia;      (2022)    Advocating for carers: a qualitative study exploring the needs of UK carers of patients with an acoustic neuroma.                   International Journal of Care and Caring        10.1332/239788221x16432145729095 <https://doi.org/10.1332/239788221x16432145729095>.    (In press).    Green open access   
 
document_url: https://discovery-pp.ucl.ac.uk/id/eprint/10144849/1/Advocating%20for%20carers.pdf