eprintid: 10161231 rev_number: 6 eprint_status: archive userid: 699 dir: disk0/10/16/12/31 datestamp: 2022-12-01 15:27:10 lastmod: 2022-12-01 15:27:10 status_changed: 2022-12-01 15:27:10 type: proceedings_section metadata_visibility: show sword_depositor: 699 creators_name: Patel, Dilisha creators_name: Pendse, Sachin creators_name: De Choudhury, Munmun creators_name: Dsane, Sarah creators_name: Kruzan, Kaylee Payne creators_name: Kumar, Neha creators_name: Singh, Aneesha creators_name: Warner, Mark title: Information-Seeking, Finding Identity: Exploring the Role of Online Health Information in Illness Experience ispublished: pub divisions: UCL divisions: B02 divisions: B04 divisions: C07 divisions: C05 divisions: D05 divisions: F70 divisions: F48 note: This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. abstract: The identities we hold have a relationship with how we come to express and understand our experiences of illness. Language forms a means for us to express this understanding and experience to others, and receive information to clarify our own experiences. Having access to new information when undergoing an illness experience can be integral in supporting decision-making for one’s health and well-being and change how we understand ourselves and our experience. Individuals are exposed to information about experiences of illness via search engines, social media, and other platforms online. This online health information may thus significantly influence the decision-making process. Research is needed to understand how the affordances of diverse online hubs for health information influence how people understand illness experiences and seek care. How people use the internet for information-seeking is often researched in individual health conditions. This workshop aims to explore the different methods researchers have used to understand online information-seeking journeys and to identify how the internet is, or can be, used to help users make sense of, and give meaning to, their experiences. Through convening a methodologically diverse set of researchers, we hope to generate a foundation and cohesive field of inquiry and community within HCI. date: 2022-11-08 date_type: published publisher: ACM official_url: https://doi.org/10.1145/3500868.3560483 oa_status: green full_text_type: other language: eng primo: open primo_central: open_green verified: verified_manual elements_id: 1988677 doi: 10.1145/3500868.3560483 lyricists_name: Patel, Dilisha lyricists_name: Singh, Aneesha lyricists_name: Warner, Mark lyricists_id: DPATA20 lyricists_id: ASING59 lyricists_id: MWARN90 actors_name: Patel, Dilisha actors_name: Jayawardana, Anusha actors_id: DPATA20 actors_id: AJAYA51 actors_role: owner actors_role: impersonator full_text_status: public pres_type: paper publication: CSCW'22 Companion: Companion Publication of the 2022 Conference on Computer Supported Cooperative Work and Social Computing pagerange: 263-266 event_title: CSCW '22: Computer Supported Cooperative Work and Social Computing event_location: Virtual Event Taiwan event_dates: 8 Nov 2022 - 22 Nov 2022 book_title: CSCW'22 Companion: Companion Publication of the 2022 Conference on Computer Supported Cooperative Work and Social Computing citation: Patel, Dilisha; Pendse, Sachin; De Choudhury, Munmun; Dsane, Sarah; Kruzan, Kaylee Payne; Kumar, Neha; Singh, Aneesha; Patel, Dilisha; Pendse, Sachin; De Choudhury, Munmun; Dsane, Sarah; Kruzan, Kaylee Payne; Kumar, Neha; Singh, Aneesha; Warner, Mark; - view fewer <#> (2022) Information-Seeking, Finding Identity: Exploring the Role of Online Health Information in Illness Experience. In: CSCW'22 Companion: Companion Publication of the 2022 Conference on Computer Supported Cooperative Work and Social Computing. (pp. pp. 263-266). ACM Green open access document_url: https://discovery-pp.ucl.ac.uk/id/eprint/10161231/1/Patel_cscw22d-sub1001-cam-i26.pdf