eprintid: 10169476 rev_number: 8 eprint_status: archive userid: 699 dir: disk0/10/16/94/76 datestamp: 2023-05-10 11:14:59 lastmod: 2023-05-10 11:14:59 status_changed: 2023-05-10 11:14:59 type: article metadata_visibility: show sword_depositor: 699 creators_name: Bamford, Claire creators_name: Wilcock, Jane creators_name: Brunskill, Greta creators_name: Wheatley, Alison creators_name: Harrison Dening, Karen creators_name: Manthorpe, Jill creators_name: Allan, Louise creators_name: Banerjee, Sube creators_name: Booi, Laura creators_name: Griffiths, Sarah creators_name: Rait, Greta creators_name: Walters, Kate creators_name: Robinson, Louise creators_name: PriDem study team, title: Improving primary care based post-diagnostic support for people living with dementia and carers: Developing a complex intervention using the Theory of Change ispublished: pub divisions: UCL divisions: B02 divisions: D12 divisions: G20 keywords: Humans, Caregivers, Pandemics, Dementia, COVID-19, Primary Health Care, COVID-19 Testing note: © 2023 Bamford et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. abstract: BACKGROUND: The need to improve support following a diagnosis of dementia is widely recognised, but it is unclear how this can best be achieved within UK health and social care systems. A task-shared and task-shifted approach has been recommended, but there is limited guidance on how to achieve this in practice. As part of a programme of research, we developed an intervention to enhance the role of primary care in post-diagnostic care and support for people living with dementia and carers. METHODS: We used the Theory of Change to develop a complex intervention informed by initial literature reviews and qualitative work. The intervention was developed through an iterative series of workshops, meetings and task groups with a range of stakeholders, including the multidisciplinary project team, people living with dementia and carers, service managers, frontline practitioners, and commissioners. RESULTS: 142 participants contributed to intervention development through face-to-face or virtual meetings. The intervention comprises three complementary strands of work focusing on: developing systems, delivering tailored care and support, and building capacity and capability. Clinical dementia leads, based in primary care networks, will facilitate the intervention providing tailored expertise and support. CONCLUSION: The Theory of Change proved useful in providing structure and engaging stakeholders. The process was challenging, took longer and was less participative than intended due to restrictions caused by the COVID-19 pandemic. We will next conduct a feasibility and implementation study to explore whether the intervention can be successfully delivered within primary care. If successful, the intervention offers practical strategies for delivering a task-shared and task-shifted approach to post-diagnostic support that could be adapted for similar health and social care contexts internationally. date: 2023-05-03 date_type: published publisher: Public Library of Science (PLoS) official_url: https://doi.org/10.1371/journal.pone.0283818 oa_status: green full_text_type: pub language: eng primo: open primo_central: open_green verified: verified_manual elements_id: 2020985 doi: 10.1371/journal.pone.0283818 medium: Electronic-eCollection pii: PONE-D-22-07096 lyricists_name: Walters, Katherine lyricists_name: Rait, Greta lyricists_name: Griffiths, Sarah lyricists_id: KWALT44 lyricists_id: GRAIT16 lyricists_id: SGRIF21 actors_name: Rait, Greta actors_id: GRAIT16 actors_role: owner funding_acknowledgements: 331 [Alzheimer's Society]; [Research Capability Funding provided by the NHS North of England Commissioning Support]; [Collaboration for Leadership in Applied Health Research and Care - Greater Manchester]; NF-SI-0616-10054 [National Institute for Health Research (NIHR)] full_text_status: public publication: PLoS One volume: 18 number: 5 article_number: e0283818 event_location: United States issn: 1932-6203 citation: Bamford, Claire; Wilcock, Jane; Brunskill, Greta; Wheatley, Alison; Harrison Dening, Karen; Manthorpe, Jill; Allan, Louise; ... PriDem study team; + view all <#> Bamford, Claire; Wilcock, Jane; Brunskill, Greta; Wheatley, Alison; Harrison Dening, Karen; Manthorpe, Jill; Allan, Louise; Banerjee, Sube; Booi, Laura; Griffiths, Sarah; Rait, Greta; Walters, Kate; Robinson, Louise; PriDem study team; - view fewer <#> (2023) Improving primary care based post-diagnostic support for people living with dementia and carers: Developing a complex intervention using the Theory of Change. PLoS One , 18 (5) , Article e0283818. 10.1371/journal.pone.0283818 <https://doi.org/10.1371/journal.pone.0283818>. Green open access document_url: https://discovery-pp.ucl.ac.uk/id/eprint/10169476/1/Plos%20On_Improving%20primary%20care%20based%20post-diagnostic%20support%20for%20people%20living%20with%20dementia%20and%20carers%20Developing%20a%20complex%20intervention%20using%20the%20Theory%20of%20Cha.pdf