@article{discovery125879, note = {{\copyright} 2008 Sampson et al; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.}, title = {Palliative care in advanced dementia; A mixed methods approach for the development of a complex intervention.}, year = {2008}, journal = {BMC Palliative Care}, volume = {7}, url = {http://dx.doi.org/10.1186/1472-684X-7-8}, abstract = {There is increasing interest in improving the quality of care that patients with advanced dementia receive when they are dying. Our understanding of the palliative care needs of these patients and the natural history of advanced disease is limited. Many people with advanced dementia have unplanned emergency admissions to the acute hospital; this is a critical event: half will die within 6 months. These patients have complex needs but often lack capacity to express their wishes. Often carers are expected to make decisions. Advance care planning discussions are rarely performed, despite potential benefits such more consistent supportive healthcare, a reduction in emergency admissions to the acute hospital and better resolution of carer bereavement.}, issn = {1472-684X}, author = {Sampson, EL and Thun{\'e}-Boyle, I and Kukkastenvehmas, R and Jones, L and Tookman, A and King, M and Blanchard, MR} }