Elliott, PM;
Camici, P;
(2018)
Transforming care for rare and inherited cardiovascular diseases through education and training.
[Editorial comment].
International Journal of Cardiology
, 257
pp. 342-343.
10.1016/j.ijcard.2018.01.035.
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Abstract
The European Union defines a rare disease as a condition that affects less than 5 in 10,000 of the general population. By this definition, there are between 6000 and 8000 known rare disorders that together affect 1 in 17 Europeans. For this reason, rare disorders are the subject of intense scrutiny by governments and healthcare organisations that are developing new systems for clinical care, research and patient involvement.
| Type: | Article |
|---|---|
| Title: | Transforming care for rare and inherited cardiovascular diseases through education and training |
| Location: | Netherlands |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1016/j.ijcard.2018.01.035 |
| Publisher version: | https://doi.org/10.1016/j.ijcard.2018.01.035 |
| Language: | English |
| Additional information: | This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. |
| Keywords: | The European Union, Rare diseases, Rare disorders, Healthcare organisations, Clinical care, Healthcare research |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Cardiovascular Science UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Cardiovascular Science > Clinical Science |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10045791 |
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