van den Bosch, K;
Krzeminska, A;
Song, EY;
van Hal, LBE;
Waltz, MM;
Ebben, H;
(2018)
Nothing About Us, Without Us: a Case Study of a Consumer-run Organization by and for People on the Autism Spectrum in the Netherlands.
Journal of Management and Organization
, 25
(Spec. 4)
pp. 464-480.
10.1017/jmo.2018.54.
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Abstract
In this exploratory case study based on qualitative research, we explore the perspectives and experiences of autistic self-advocates in the Netherlands regarding autism, (self-)advocacy, and consumer-run organizations. The focus of our study is a consumer-run organization by and for adult Persons on the Autism Spectrum in the Netherlands: PAS-Nederland or PAS for short. Our analysis reveals four themes relevant to the acceptance and integration of adults with autism into society and work: (1) invisibility of autistic adults; (2) diversity of the autism spectrum; (3) autistic leadership; and (4) collaboration between people with and without autism. We discuss the practical implications of our findings for the inclusion of people with autism in work and society. Our study underscores the importance of putting autistic people at the center of decision-making processes and solutions aimed at improving their outcomes in society, in general, and in the workplace specifically.
| Type: | Article |
|---|---|
| Title: | Nothing About Us, Without Us: a Case Study of a Consumer-run Organization by and for People on the Autism Spectrum in the Netherlands |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1017/jmo.2018.54 |
| Publisher version: | https://doi.org/10.1017/jmo.2018.54 |
| Language: | English |
| Additional information: | This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. |
| Keywords: | autism, autism spectrum disorder, consumer-run organization, experiential knowledge, self-advocacy |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > UCL BEAMS UCL > Provost and Vice Provost Offices > UCL BEAMS > Faculty of the Built Environment UCL > Provost and Vice Provost Offices > UCL BEAMS > Faculty of the Built Environment > The Bartlett Sch of Const and Proj Mgt |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10059028 |
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