Hoddinott, P;
Pollock, A;
O'Cathain, A;
Boyer, I;
Taylor, J;
MacDonald, C;
Oliver, S;
(2018)
How to incorporate patient and public perspectives into the design and conduct of research.
F1000Research
, 7
(752)
10.12688/f1000research.15162.1.
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Abstract
International government guidance recommends patient and public involvement (PPI) to improve the relevance and quality of research. PPI is defined as research being carried out 'with' or 'by' patients and members of the public rather than 'to', 'about' or 'for' them ( http://www.invo.org.uk/). Patient involvement is different from collecting data from patients as participants. Ethical considerations also differ. PPI is about patients actively contributing through discussion to decisions about research design, acceptability, relevance, conduct and governance from study conception to dissemination. Occasionally patients lead or do research. The research methods of PPI range from informal discussions to partnership research approaches such as action research, co-production and co-learning. This article discusses how researchers can involve patients when they are applying for research funding and considers some opportunities and pitfalls. It reviews research funder requirements, draws on the literature and our collective experiences as clinicians, patients, academics and members of UK funding panels.
| Type: | Article |
|---|---|
| Title: | How to incorporate patient and public perspectives into the design and conduct of research |
| Location: | England |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.12688/f1000research.15162.1 |
| Publisher version: | https://doi.org/10.12688/f1000research.15162.1 |
| Language: | English |
| Additional information: | © 2018 Hoddinott P et al. This is an open access article distributed under the terms of the Creative Commons Attribution Licence (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
| Keywords: | Public and Patient Involvement, Public Engagement, Qualitative research, Research Methods, Co-production, Partnership approaches |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Education UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Social Research Institute |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10061512 |
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