McDonagh, L; Blomquist, P; Wayal, S; Cochrane, S; Calliste, J; Cassell, J; Edelman, N; (2020) Collaborative and consultative patient and public involvement in sexual health research: Lessons learned from four case studies. Sexually Transmitted Infections , 96 (2) pp. 96-100. 10.1136/sextrans-2018-053922.

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Abstract

Objectives: Patient and Public Involvement (PPI) is increasingly mandated in health research. However, there is little guidance on conducting PPI for research on episodic infections, risk factors, hard-to-reach populations, or stigmatised behaviours. The aim of this paper is to address the gap in PPI guidance by illustrating different approaches to challenging PPI scenarios. Methods: Four case studies of sexual health research PPI, each of which discusses three stages of PPI (defining, accessing and engaging with lay advisors). Results: Researchers may need to use broadly define lay advisors; involving those with insight into population of interest can be beneficial. Alternative and multiple routes to access patients/public should be considered. Flexible means of engagement can enable lay advisors to contribute anonymously, remotely and/or opportunistically. Conclusions: Case studies may help researchers in sexual health (and other fields) to better meet the challenges of PPI for studies which concern hard-to-reach populations, episodic infections, risk factors, and stigmatised behaviours.

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