Miller, M;
Rumble, D;
Hirsh, A;
Vervoort, T;
Crosby, L;
Madan-Swain, A;
Lebensburger, J;
... Trost, Z; + view all
(2021)
Pain-Related Injustice Appraisals in Youth with Sickle Cell Disease: A Preliminary Investigation.
Pain Medicine
, 22
(10)
pp. 2207-2217.
10.1093/pm/pnab001.
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Abstract
Objectives: Sickle cell disease (SCD) is a genetic disorder that affects approximately 100,000 Americans, the majority of whom are African American. SCD-related pain often has deleterious effects on functioning and quality of life. The inherited nature of SCD, SCD-related stigma, and serious physical and functional impact of SCD-related pain create a situation ripe for individuals to appraise their SCD-related pain as unfair or unjust. The aim of this preliminary investigation is to explore the extent to which pediatric patients with SCD appraise their pain as unjust and how these appraisals relate to functioning. / Methods: Participants were youth with SCD (N = 30, mean age = 11.3, 57% boys) who attended a hematology clinic visit. Patients were invited to complete paper-based questionnaires assessing pain-related injustice appraisals, pain catastrophizing, pain and hurt, functional disability, depression, anxiety, and peer relationships. / Results: Results of hierarchical regressions indicate that pain-related injustice significantly predicted functional disability, depression, and anxiety after controlling for patient pain and catastrophizing. / Conclusions: These findings suggest that pain-related injustice appraisals are an important contributor to the pain experience of youth with SCD. Early identification and remediation of pain-related injustice appraisals could have long-term functional benefits for youth with SCD.
| Type: | Article |
|---|---|
| Title: | Pain-Related Injustice Appraisals in Youth with Sickle Cell Disease: A Preliminary Investigation |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1093/pm/pnab001 |
| Publisher version: | https://doi.org/10.1093/pm/pnab001 |
| Language: | English |
| Additional information: | This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. |
| Keywords: | Injustice, Sickle Cell, Functioning, Anxiety, Depression, Youth |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Developmental Neurosciences Dept |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10122975 |
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