Kassa, C; Pavlopoulou, G; (2021) Lonely Lockdown. Life for siblings of disabled children in the UK. UCL Institute of Education: London, UK.

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Abstract

In May 2020, Sibs conducted a survey of parents in order to better understand how the needs of siblings of disabled children were affected by lockdown. The first survey results made difficult reading: 75% of parents felt their sibling child’s mental health had worsened in lockdown; 50% of siblings were providing more care; a third were missing family and friends. Ten months on and in lockdown 3, we wanted to explore if and how things had changed for siblings of disabled children. Sibs Charity, in collaboration with University College London (UCL) researcher Dr Georgia Pavlopoulou launched a survey in February 2021 for 4 weeks to hear from parents about family experiences with a focus on siblings' day-to-day experiences and mental health needs. We also wanted to understand the nature of any school support, how the relationships between siblings and their brothers and sisters had been affected and what some of the greatest challenges were for children and young people. We hope the results of this survey will help to highlight the impact which lockdown has had on the majority of siblings and go on to inform a recovery response. Our findings suggest that the pandemic has had both an immediate and lasting effect on the mental health of many siblings who will need access to appropriate support from CAMHS services and schools in the months and years to come as part of a recovery plan.

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