Bluebond-Langner, M;
Langner, R;
(2021)
Decision-making with children, young people, and parents.
In: Hain, R and Goldman, A and Rapoport, A and Meiring, M, (eds.)
Oxford Textbook of Palliative Care for Children.
Oxford University Press: Oxford, UK.
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Abstract
The origin and importance of support in decision-making in paediatric palliative care (PPC) is rooted in its primary goal: to reduce suffering and maintain and even improve the quality of life of seriously ill children and their families. Decisions take place throughout the trajectory of a child’s illness and many are straight forward and barely noticed. However, often at pivotal points such as changes in treatment plans and the focus of care, the outcomes of the decisions assume much more importance and how they are made becomes a significant task for the family and clinicians involved.
| Type: | Book chapter |
|---|---|
| Title: | Decision-making with children, young people, and parents |
| ISBN-13: | 9780198821311 |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1093/med/9780198821311.001.0001 |
| Publisher version: | https://doi.org/10.1093/med/9780198821311.001.0001 |
| Language: | English |
| Additional information: | This version is the version of record. For information on re-use, please refer to the publisher’s terms and conditions. |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Population, Policy and Practice Dept |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10132415 |
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