Kassa, C; Pavlopoulou, G; (2020) “Coming second all the time” Life in lockdown for siblings of disabled children. Sibs: London, UK.

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Abstract

The research, by Sibs charity Chief Executive Clare Kassa with contributions by UCL Institute of Education (IOE) academic Dr Georgia Pavlopoulou, reveals 75% of parents think their sibling child’s mental health has worsened. The study, which is the first to look at siblings’ experiences in the UK during the pandemic, noted that siblings are often an overlooked group of children in both school and wider communities for whom lockdown has had a tremendous impact on their health and wellbeing. Having conducted a survey with 876 parents in May 2020, the team discovered that 50% of siblings are providing more care in lockdown. 1 in 3 siblings are also feeling isolated and missed support from family and friends in during lockdown. Parents highlighted the lack of space and breaks for the siblings and the difficulties in managing their children’s different needs. One parent said: “Keeping up with typical activities and keeping one socialised whilst adapting the normal routines so drastically with another is very challenging.” The report highlights several recommended actions.

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