Hobson, Doug;
(2021)
How do partners of people with dementia decide whether to tell family and friends about the diagnosis?: a thematic analysis.
Doctoral thesis (D.Clin.Psy), UCL (University College London).
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Abstract
Background: Family caregiver(s) (FCG) disclosure of a person(s) with dementia’s (PwD) diagnosis to their wider family and social network has risks and potential benefits. Aims: To explore the factors that influence a FCG’s decision-making process on whether to disclose or conceal their partner’s dementia diagnosis. Method: Individual semi-structured interviews were carried out with 12 current or former spousal FCGs of a PwD, using a topic guide. Recruitment took place via social media and word of mouth. Audio-recordings were transcribed and analysed using reflexive thematic analysis, following the stages outlined by Braun and Clarke (2021). A constant comparison approach was used to evolve codes and emerging themes. Results: Analysis identified three overarching themes: ‘Decisional absence’, ‘Decisional influences’, and ‘Decisional dilemmas’. Conclusions: This research has increased our knowledge of how spousal FCGs make decisions in telling others about their partner’s diagnosis, looking at how they may avoid decision-making, key decisional influences, and the ongoing dilemmas they face. The implications for these findings are discussed alongside areas for future research.
| Type: | Thesis (Doctoral) |
|---|---|
| Qualification: | D.Clin.Psy |
| Title: | How do partners of people with dementia decide whether to tell family and friends about the diagnosis?: a thematic analysis |
| Event: | UCL |
| Open access status: | An open access version is available from UCL Discovery |
| Language: | English |
| Additional information: | Copyright © The Author 2021. Original content in this thesis is licensed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0) Licence (https://creativecommons.org/licenses/by-nc/4.0/). Any third-party copyright material present remains the property of its respective owner(s) and is licensed under its existing terms. Access may initially be restricted at the author’s request. |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10134601 |
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