Ormston, K;
Rose, E;
Gallagher, K;
(2022)
George's Lullaby: A case study of the use of Music Therapy to support parents and their infant on a palliative pathway.
Journal of Neonatal Nursing
, 28
(3)
pp. 203-206.
10.1016/j.jnn.2022.01.011.
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Abstract
BACKGROUND: Having an infant diagnosed with a life-limiting condition is a stressful time for parents and has been shown to have an impact on parental mental health. Music Therapy, when provided by an HCPC registered Music Therapist with enhanced Neonatal training, can empower parents to share culturally based, personal music with their infant to assist with developmental care and create precious memories. These positive experiences are vital to hold in order to continue bonds after death and assist in processing grief. PRIMARY DIAGNOSIS: This case study presents a full term infant with surfactant deficiency (R192). INTERVENTION: Weekly Music Therapy was provided on the Neonatal Intensive Care Unit (NICU) with parents and infant following the Rhythm Breath Lullaby: First Sounds approach. It was then used again at the end of the infant's life at the family home. OUTCOMES: Music Therapy provided a focus for the family while on the unit and supported family integrated developmental care of the infant. The relationship developed, a long with the music shared, then supported the family emotionally and physically as parent's held their baby at end of life. PRACTICE RECOMMENDATIONS: To our knowledge this is the first time Music Therapy has been provided on the NICU through to end of life at home with the same Music Therapist. Music Therapy on Neonatal Unit is uncommon in the UK but has potential to support infant comfort whilst supporting the sharing of parent identities. Music Therapy has the potential to provide a focus that enables parents, who have a heightened awareness of the proximity of loss, to interpret, play and comfort their infant.
| Type: | Article |
|---|---|
| Title: | George's Lullaby: A case study of the use of Music Therapy to support parents and their infant on a palliative pathway |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1016/j.jnn.2022.01.011 |
| Publisher version: | https://doi.org/10.1016/j.jnn.2022.01.011 |
| Language: | English |
| Additional information: | This version is the author accepted manuscript. For information on re-use, please refer to the publisher’s terms and conditions. |
| Keywords: | Case study, Music therapy, Palliative care, Neonate, Hospice, End-of-Life, Family centred care |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL EGA Institute for Womens Health > Maternal and Fetal Medicine UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL EGA Institute for Womens Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10149054 |
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