Lilley, Rozanna;
Lawson, Wenn;
Hall, Gabrielle;
Mahony, Joanne;
Clapham, Hayley;
Heyworth, Melanie;
Arnold, Samuel;
... Pellicano, Elizabeth; + view all
(2022)
“Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults.
Journal of Autism and Developmental Disorders
10.1007/s10803-022-05667-z.
(In press).
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Abstract
In this paper, we report on a participatory oral history study documenting the lives of late-diagnosed autistic adults in Australia. We interviewed 26 autistic adults about their life history and the impact of late diagnosis. All were diagnosed after the age of 35, growing up in an era when autism was not well known. Using reflexive thematic analysis, we uncovered a rich body of reflections on shared Autistic identity and identified three major themes within that data set: 'conceptualising the Autistic family', 'creating Autistic community', and 'contesting Autistic identity'. Overall, the study provides insights into the active creation of shared Autistic identity and the importance of Autistic community to these late-diagnosed autistic adults.
| Type: | Article |
|---|---|
| Title: | “Peas in a pod”: Oral History Reflections on Autistic Identity in Family and Community by Late-Diagnosed Adults |
| Location: | United States |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1007/s10803-022-05667-z |
| Publisher version: | https://doi.org/10.1007/s10803-022-05667-z |
| Language: | English |
| Additional information: | This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. |
| Keywords: | Social Sciences, Psychology, Developmental, Psychology, Autism, Late-diagnosed adults, Participatory research, Identity, Family, Community, SPECTRUM DISORDER, MENTAL-HEALTH, PARENTS, EXPERIENCES, PHENOTYPE, CHILDREN, ONLINE, COMMUNICATION, PERSONALITY, DISABILITY |
| UCL classification: | UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences > Clinical, Edu and Hlth Psychology UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10152648 |
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