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How Do People with Inflammatory Bowel Disease Understand their Pain

Kacorova, Adela; (2022) How Do People with Inflammatory Bowel Disease Understand their Pain. Doctoral thesis (D.Clin.Psy), UCL (University College London). Green open access

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Abstract

Volume one of this thesis comprises three parts. Part I presents a conceptual introduction which aims to give a broader overview to the empirical study presented in part II. A review of the literature is used to present the key ideas, concepts and theories that are pertinent to this research and its objectives. The discussion outlines Inflammatory Bowel Disease (IBD), chronic pain and specifically, visceral pain. Experience and understanding of IBD pain are discussed and placed in a broader context. Qualitative research on making sense of pain is presented and synthesised. Part II presents an empirical study exploring individuals’ understanding of their IBD pain. IBD pain is a neglected area of research, despite being one of the most common and debilitating symptoms in IBD. The study interviewed 20 people adults with IBD utilising the Grid Elaboration Method (GEM). Thematic analysis was used to analyse the data and produce three, overlapping themes: making sense of my pain, navigating my care and support and it takes its toll. The findings showed that making sense of one’s pain is experiential, inextricably linked with navigating support and managing the impact of pain. The findings indicate that IBD pain warrants more attention and should be proactively integrated into assessments and management approaches. Part III of this thesis presents a critical appraisal of the research process, including both its learning opportunities and challenges, as experienced by the researcher. This section encompasses ideas gathered from a bracketing interview and reflective research journal which was kept throughout the research process to aid reflexivity.

Type: Thesis (Doctoral)
Qualification: D.Clin.Psy
Title: How Do People with Inflammatory Bowel Disease Understand their Pain
Open access status: An open access version is available from UCL Discovery
Language: English
Additional information: Copyright © The Author 2022. Original content in this thesis is licensed under the terms of the Creative Commons Attribution 4.0 International (CC BY 4.0) Licence (https://creativecommons.org/licenses/by/4.0/). Any third-party copyright material present remains the property of its respective owner(s) and is licensed under its existing terms. Access may initially be restricted at the author’s request.
UCL classification: UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL
URI: https://discovery-pp.ucl.ac.uk/id/eprint/10155778
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