Wheat, Hannah;
Weston, Lauren;
Oh, Tomasina M;
Morgan-Trimmer, Sarah;
Ingram, Wendy;
Griffiths, Sarah;
Sheaff, Rod;
... Byng, Richard; + view all
(2023)
Longitudinal realist evaluation of the dementia PersonAlised care team (D-PACT) intervention: protocol.
BJGP Open
, Article BJGPO.2023.0019. 10.3399/BJGPO.2023.0019.
(In press).
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Abstract
BACKGROUND: Different dementia support roles exist but evidence is lacking on which aspects are best, for whom and in what circumstance, and on their associated costs and benefits. Phase 1 of the Dementia PersonAlised Care Team programme (D-PACT), developed a post-diagnostic primary care-based intervention for people with dementia and their carers and assessed the feasibility of a trial. AIM: Phase 2 of the programme aims to 1) refine our programme theory on how, when and for whom the intervention works and 2) evaluate its value and impact. DESIGN & SETTING: A realist longitudinal mixed-methods evaluation will be conducted in urban, rural, and coastal areas across Southwest and Northwest England where low-income groups or ethnic minorities (eg, South Asian) are represented. Design was informed by patient, public and professional stakeholder input and Phase one findings. METHOD: High volume qualitative and quantitative data will be collected longitudinally from people with dementia, carers and practitioners. Analyses will comprise: 1) realist longitudinal case studies; 2) conversation analysis of recorded interactions; 3) statistical analyses of outcome and experience questionnaires; 4 a) health economic analysis examining costs of delivery; 4b) realist economic analysis of high-cost events and 'near misses'. All findings will be synthesised using a joint display table, evidence appraisal tool, triangulation and stakeholder co-analysis. CONCLUSION: Our realist evaluation will describe how, why and for whom the intervention leads (or not) to change over time; it also demonstrates how a non-randomised design can be more appropriate for complex interventions with similar questions or populations.
| Type: | Article |
|---|---|
| Title: | Longitudinal realist evaluation of the dementia PersonAlised care team (D-PACT) intervention: protocol |
| Location: | England |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.3399/BJGPO.2023.0019 |
| Publisher version: | https://doi.org/10.3399/BJGPO.2023.0019 |
| Language: | English |
| Additional information: | Copyright © 2023, The Authors This article is Open Access: CC BY license (https://creativecommons.org/licenses/by/4.0/) |
| Keywords: | dementia, personalised care, primary care, realist evaluation |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health > Primary Care and Population Health |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10170892 |
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