Mendoza-Quispe, D;
Perez-Leon, S;
Alarcon-Ruiz, CA;
Gaspar, A;
Cuba-Fuentes, MS;
Zunt, JR;
Montori, VM;
... Miranda, JJ; + view all
(2023)
Scoping review of measures of treatment burden in patients with multimorbidity: advancements and current gaps.
Journal of Clinical Epidemiology
, 159
pp. 92-105.
10.1016/j.jclinepi.2023.05.013.
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Abstract
Objectives: To identify, assess, and summarize the measures to assess burden of treatment in patients with multimorbidity (BoT-MMs) and their measurement properties. Study Design and Setting: MEDLINE via PubMed was searched from inception until May 2021. Independent reviewers extracted data from studies in which BoT-MMs were developed, validated, or reported as used, including an assessment of their measurement properties (e.g., validity and reliability) using the COnsensus-based Standards for the selection of health Measurement INstruments. Results: Eight BoT-MMs were identified across 72 studies. Most studies were performed in English (68%), in high-income countries (90%), without noting urban-rural settings (90%). No BoT-MMs had both sufficient content validity and internal consistency; some measurement properties were either insufficient or uncertain (e.g., responsiveness). Other frequent limitations of BoT-MMs included absent recall time, presence of floor effects, and unclear rationale for categorizing and interpreting raw scores. Conclusion: The evidence needed for use of extant BoT-MMs in patients with multimorbidity remains insufficiently developed, including that of suitability for their development, measurement properties, interpretability of scores, and use in low-resource settings. This review summarizes this evidence and identifies issues needing attention for using BoT-MMs in research and clinical practice.
| Type: | Article |
|---|---|
| Title: | Scoping review of measures of treatment burden in patients with multimorbidity: advancements and current gaps |
| Location: | United States |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1016/j.jclinepi.2023.05.013 |
| Publisher version: | https://doi.org/10.1016/j.jclinepi.2023.05.013 |
| Language: | English |
| Additional information: | © 2023 The Authors. Published by Elsevier Inc. This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/ 4.0/). |
| Keywords: | Chronic disease, Cost of illness, Multimorbidity, Patient-reported outcome measures, Scoping review, Surveys and questionnaires |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > Institute of Epidemiology and Health > Primary Care and Population Health |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10172911 |
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