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“I want to say that disabled people also want to live as human beings”: Stigma Experiences of Women with Disabilities in Pakistan

Dixon, Amy; (2023) “I want to say that disabled people also want to live as human beings”: Stigma Experiences of Women with Disabilities in Pakistan. Doctoral thesis (D.Clin.Psy), UCL (University College London). Green open access

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Abstract

People with disabilities experience significant discrimination which threatens their quality of life. Further research is needed to improve our understanding of stigma and how it manifests, in order to develop effective stigma-reduction interventions and support the rights of people with disabilities. This thesis is presented in three parts, focussing, overall, on measuring and understanding disability-related stigma. Part 1 presents a systematic review of available stigma measures designed to be completed by people with disabilities. It provides an overview and critical appraisal of the psychometric quality of the identified measures, and concludes that, currently, there is lack of evidence regarding the quality of self-report disability stigma measures. Further development and validation of stigma scales for people with disabilities is needed. Part 2 comprises of an empirical study conducted in Pakistan, that focussed on the implementation of the Women with Disabilities Stigma Inventory (WDSI), a new self-report stigma measure that was culturally adapted and co-designed with women with disabilities. The findings indicated that women with disabilities in Pakistan experience significant levels of stigma, aspects of which are influenced by sociodemographic variables. Part 3 sets out a critical appraisal of the empirical paper, reflecting on the process of conducting research cross-culturally in partnership with international agencies. This is followed by a discussion of the ethical considerations raised during the project. Further, an exploration of the challenges of participatory research and designing a quantitative measure of stigma sensitive to the effects of intersectionality is provided. Finally, recommendations are made for future research and dissemination of the findings.

Type: Thesis (Doctoral)
Qualification: D.Clin.Psy
Title: “I want to say that disabled people also want to live as human beings”: Stigma Experiences of Women with Disabilities in Pakistan
Open access status: An open access version is available from UCL Discovery
Language: English
Additional information: Copyright © The Author 2023. Original content in this thesis is licensed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0) Licence (https://creativecommons.org/licenses/by-nc/4.0/). Any third-party copyright material present remains the property of its respective owner(s) and is licensed under its existing terms. Access may initially be restricted at the author’s request.
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences
URI: https://discovery-pp.ucl.ac.uk/id/eprint/10177028
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