Twomey, Christine;
McGonigle, Enda;
Lola Solebo, Ameenat;
(2023)
Co-creation of a Novel Childhood Onset Rare Disease Self-Care Support Tool.
Academic Pediatrics
10.1016/j.acap.2023.09.013.
(In press).
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Type: | Article |
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Title: | Co-creation of a Novel Childhood Onset Rare Disease Self-Care Support Tool |
Open access status: | An open access version is available from UCL Discovery |
DOI: | 10.1016/j.acap.2023.09.013 |
Publisher version: | https://doi.org/10.1016/j.acap.2023.09.013 |
Language: | English |
Additional information: | This is an open access article under the CC BY license (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited. |
Keywords: | Rare disease, Self-care, well-being, Chronic Disease |
UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Population, Policy and Practice Dept |
URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10177532 |
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