Chen, Jishizhan;
Li, Yihan;
Chang, Jinke;
(2023)
Rare diseases in developing countries: Insights from China's collaborative network.
The International Journal of Health Planning and Management
10.1002/hpm.3712.
(In press).
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Abstract
Rare diseases (RDs) are complex conditions and a worldwide healthcare challenge. The healthcare policymakers in developing countries lack templates from countries at the same level of development. This article introduced and discussed the combination of top‐down strategies and bottom‐up interventions in addressing RDs in a developing country, China, as an example. The government leads the formulation of laws, policies, and guidance to coordinate national resources, while local authorities and nongovernment organisations (NGOs) are responsible for policy localisation and complement policy gaps. This article may inspire other developing countries of improving RD healthcare.
| Type: | Article |
|---|---|
| Title: | Rare diseases in developing countries: Insights from China's collaborative network |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1002/hpm.3712 |
| Publisher version: | https://doi.org/10.1002/hpm.3712 |
| Language: | English |
| Additional information: | © 2023 The Authors. The International Journal of Health Planning and Management published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
| Keywords: | bottom-up interventions, developing countries, healthcare policymakers, rare diseases, top-down strategies |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > UCL BEAMS UCL > Provost and Vice Provost Offices > UCL BEAMS > Faculty of Engineering Science UCL > Provost and Vice Provost Offices > UCL BEAMS > Faculty of Engineering Science > Dept of Mechanical Engineering |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10178022 |
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