Vindrola-Padros, Cecilia;
Fern, Lorna A;
Gerrand, Craig;
Hulbert-Williams, Nicholas J;
Lawal, Maria;
Storey, Lesley;
Wells, Mary;
... Taylor, Rachel M; + view all
(2023)
Experiences of fear of recurrence in patients with sarcoma.
Journal of Psychosocial Oncology Research and Practice
, 5
(4)
10.1097/or9.0000000000000113.
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Abstract
Background: Fear of cancer recurrence (FCR) is often described as the most distressing consequence of cancer and has a negative impact on quality of life. There have been few investigations into the FCR in patients with sarcomas. We sought to explore the patient's FCR after a sarcoma diagnosis to determine when these fears were presented and the strategies patients used to address these fears. Methods: This was a secondary analysis of qualitative semi-structured interview data from patients with sarcoma, as part of a study to develop a patient-reported outcome measure. This study included 121 patients from across the United Kingdom aged 13–82 years. Telephone and face-to-face interviews focused on the experiences of living with and beyond a sarcoma diagnosis, based on the domains of quality of life (physical, emotional, and social well-being). A secondary analysis was performed using the Common-Sense Model. Results: The following four key themes were identified: triggers for FCR (symptoms and events), discussion of FCR, consequences of FCR (negative impact on quality of life), and strategies used to deal with FCR. Conclusion: Patients with sarcoma reported a FCR at different stages of treatment and how these fears played a role in their daily lives. Despite these experiences, the identification and management of FCR have not been reported as a core component of routine clinical practice.
| Type: | Article |
|---|---|
| Title: | Experiences of fear of recurrence in patients with sarcoma |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1097/or9.0000000000000113 |
| Publisher version: | https://doi.org/10.1097/or9.0000000000000113 |
| Language: | English |
| Additional information: | Copyright © 2023 The Authors. Published by Wolters Kluwer Health Inc., on behalf of the International Psycho-Oncology Society. This is an open access article distributed under the terms of the Creative Commons Attribution-Non Commercial-No Derivatives License 4.0 (CCBY-NC-ND), where it is permissible to download and share the work provided it is properly cited. The work cannot be changed in any way or used commercially without permission from the journal. |
| Keywords: | fear of recurrence, sarcoma, scanxiety |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Div of Surgery and Interventional Sci UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Medical Sciences > Div of Surgery and Interventional Sci > Department of Targeted Intervention |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10178888 |
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