Carter, Joanna; (2024) The Adaptation of Group Cognitive Stimulation Therapy for People With Intellectual Disabilities who Have Developed Dementia. Doctoral thesis (D.Clin.Psy), UCL (University College London).

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Abstract

Part 1 of this thesis is a systematic review exploring the views and experiences of dementia from the perspective of people with intellectual disabilities with and without co-occurring dementia as well as exploring the qualitative methodologies employed to include people with intellectual disabilities with dementia in qualitative research. A thematic synthesis of 9 studies was carried out in this review. Part 2 was originally due to be a qualitative investigation of the acceptability and feasibility of CST for people with intellectual disabilities and dementia (CSTIDD). However due to significant delays with getting site approval, recruitment challenges and logistical difficulties with running the groups there were limited participants for interview. The focus of Part 2 was therefore shifted to the development of the adapted intervention through a series of stages of input from stakeholders, including one pilot group of CSTIDD. The final adapted supplement for CSTIDD is reported. Part 3 is a critical appraisal which reflects on the process of carrying out Part 1 and Part 2. This includes reflecting on my personal influence on the research, the process of reviewing the qualitative data in Part 1 and some of the challenges of Part 2 that led to the change in focus. Terminology Although the term “learning disability” is widely used in UK clinical services, “intellectual disability” is more widely used in UK and global research, therefore this terminology will be used throughout.

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