Varley, Rosemary; Sagoe, Katy; (2024) The impact of ageing on the health and wellbeing of people with thalidomide embryopathy: a comparison of the health impact with the general population. Disability and Rehabilitation 10.1080/09638288.2024.2307357. (In press).

Text Varley_The impact of ageing on the health and wellbeing of people with thalidomide embryopathy_AAM.pdf Access restricted to UCL open access staff until 7 February 2025. Download (498kB)

Abstract

Purpose: As people living with thalidomide embryopathy (TE) are now entering their seventh decade, we examine the impact of ageing and the prevalence of comorbid health conditions reported in holistic needs assessments (HNAs) by individuals with TE, compare it with an age-matched sample of the general population, and explore the relationship between comorbidities and TE pattern of impairment. Materials and methods: The HNA categories were mapped and compared to those of the Health Survey for England (HSE) and analysed across four impairment groups (A–D). Results: 94% (392/415) of individuals with TE residing in the UK participated in the HNA and consented to a secondary analysis of the data. Less than 2% (5/392) reported no comorbidities; 94% reported nervous system problems; including pain, pins and needles and numbness. Individuals with TE reported a significantly greater number of health comorbidities, including musculoskeletal problems, than the age-matched HSE population. Conclusions: Individuals with TE report significantly more health and well-being concerns than the general population of a similar age. Long-term monitoring is needed to ensure that support and rehabilitation services can meet their evolving needs.

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