Øverland, Elisabeth;
Hauge, Åshild Lappegard;
Orm, Stian;
Øie, Merete Glenne;
Skogli, Erik Winther;
Pellicano, Elizabeth;
Andersen, Per Normann;
(2024)
"I have to charge my social battery": Perspectives from autistic young adults on Quality of Life.
Autism
10.1177/13623613241245578.
(In press).
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Abstract
In this study we have asked a group of autistic young adults to describe what is important for their quality of life. The 14 participants (aged 21-29 years) were recruited from a 10-year follow-up study of autistic people. During interviews, our participants described the importance of having relationships with family, friends and pets. Having meaningful activities and being able to immerse themselves in particular interests was also reported to be important for a good quality of life. Interests had also guided their choice of what to study and what to do for work. They also spoke of how communication problems with professionals, bullying and sensory and emotional overload could have a negative impact on quality of life. Future interventions should focus on how professionals can help autistic people to connect to people/animals and meaningful activities, as the participants described this as important for having a good quality of life. These findings may be helpful in enhancing how passions and interests can be seen as opportunities for both academic and work careers for autistic people. Future research and interventions should also look at the communication barriers between autistic people and professionals, and how two-way understanding can be improved.
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