Pardi, Jane;
(2024)
Understanding Barriers and Facilitators to Dementia Risk Reduction behaviours among Indian Populations in the United Kingdom: A Thematic Analysis.
Doctoral thesis (D.Clin.Psy), UCL (University College London).
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Abstract
Despite their status as the largest ethnic minority in the United Kingdom, the healthcare needs and experiences of South Asian people remain largely under-researched and inadequately understood (Prinjha et al., 2020). This thesis aims to investigate the experiences of South Asian individuals in the United Kingdom with regard to palliative care services, as well as identifying barriers and facilitators to dementia risk reduction behaviours amongst Indian populations, thereby contributing to the limited bodies of literature on these subjects. Part 1 presents a systematic review of the qualitative literature on the experiences of South Asian people, their carers, and staff members in the United Kingdom regarding palliative care services. The final review included a total of sixteen published studies. Findings suggested that key challenges faced by this population include limited awareness about available palliative care support, language and cultural barriers hindering open communication with healthcare staff, and a lack of integration of religious and cultural practices within caregiving approaches. Additionally, the review highlighted pervasive stigma surrounding discussions about death and end-of-life care within South Asian communities. Further research is needed to explore the nuanced needs of this population and to develop culturally appropriate interventions. In Part 2, a qualitative investigation was conducted on the perspectives of cognitively healthy Indian adults in the United Kingdom regarding the barriers and facilitators related to engaging in lifestyle factors that may influence dementia risk. A thematic analysis identified three main themes: 1. Navigating the Complexities of Dementia Awareness and Discourse in South Asian Communities 2. Determinants of Healthy Lifestyle Engagement: Personal and Contextual Factors Influences on Lifestyle Choices, and 3. Diverse Perspectives on Health: Accessing Medical Relationships and Other Information Sources. The findings underscore the need for culturally tailored education initiatives and support services to promote dementia risk reduction within this community. Part 3 contains a critical appraisal, highlighting the interplay between the researcher and the research process, as well as offering further reflections on methodological choices and the resolution of challenges encountered during the study.
Type: | Thesis (Doctoral) |
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Qualification: | D.Clin.Psy |
Title: | Understanding Barriers and Facilitators to Dementia Risk Reduction behaviours among Indian Populations in the United Kingdom: A Thematic Analysis |
Open access status: | An open access version is available from UCL Discovery |
Language: | English |
Additional information: | Copyright © The Author 2024. Original content in this thesis is licensed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0) Licence (https://creativecommons.org/licenses/by-nc/4.0/). Any third-party copyright material present remains the property of its respective owner(s) and is licensed under its existing terms. Access may initially be restricted at the author’s request. |
UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences |
URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10196089 |
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