Burn, Olivia;
(2024)
The journey to a functional tics diagnosis and experiences of post diagnostic support: Perspectives from adolescents and their parents.
Doctoral thesis (D.Clin.Psy), UCL (University College London).
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Abstract
Tic disorders (TDs) are associated with increased relationship difficulties, stigmatisation, and co-occurring psychiatric diagnoses. It is important to understand factors contributing to reduced wellbeing in this population to support quality of life and effective service provision. Much of the literature however concerns TDs in the United States of America (USA), Europe, and Australia, with a focus on persistent TDs such as Tourette’s syndrome (TS). This limits generalisability to other TDs and cultures. Part 1 of the thesis is a scoping review which explores cross-cultural components of stigma (knowledge, beliefs, attitudes, and responses) in TDs outside of the USA, Europe and Australia. 20 relevant studies of mixed methods were identified and synthesised using a scoping review framework. Part 2 comprises a qualitative empirical study of experiences of obtaining a functional tics diagnosis and post-diagnostic support in a sample of adolescents and their parents. A reflexive Thematic Analysis (Braun & Clarke, 2019) was employed to analyse semi-structured interviews. Part 3 reflects upon issues central to the process of conducting the empirical study. This includes issues related to researcher bias, reflections on the study limitations and how challenges encountered during the research process were managed.
| Type: | Thesis (Doctoral) |
|---|---|
| Qualification: | D.Clin.Psy |
| Title: | The journey to a functional tics diagnosis and experiences of post diagnostic support: Perspectives from adolescents and their parents |
| Open access status: | An open access version is available from UCL Discovery |
| Language: | English |
| Additional information: | Copyright © The Author 2024. Original content in this thesis is licensed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0) Licence (https://creativecommons.org/licenses/by-nc/4.0/). Any third-party copyright material present remains the property of its respective owner(s) and is licensed under its existing terms. Access may initially be restricted at the author’s request. |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10197155 |
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