Everett, Shereen; (2024) “I finally felt connected to society”: Exploring the influence of an autism diagnosis on the identities of Black Autistic Women. Doctoral thesis (D.Clin.Psy), UCL (University College London).

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Abstract

Aims: Recent studies on the experiences of autistic women has highlighted the profound impact of an autism diagnosis on identity. However, most research has lacked an intersectional approach and predominantly focused on white autistic women, excluding Black autistic women. This study explored how an autism diagnosis influenced the identities of Black autistic women in the UK. Methods: Semi-structured interviews were carried out with ten Black autistic women. Interview transcripts were analysed using Interpretative Phenomenological Analysis (IPA). Results: Four Group Experiential themes were identified: 1) Before the autism diagnosis: a negative self-identity, 2) A journey of self-discovery, 3) Autistic identity development and 4) Autism as something beneficial. Conclusions: Participants described the autism diagnosis as transformative as it provided an explanatory framework for their lifelong feelings of difference which enabled self-compassion. The diagnosis initiated a journey of self-discovery which enhanced participants’ self-understanding and contributed to a positive identity. Key themes included navigating intersecting identities as Black women with new autistic identities and experiencing both a sense of belonging and isolation within autistic communities due to their shared and different identities. The significant underrepresentation of Black autistic people in the media, research and autism communities was also highlighted as a major concern.

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