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Socioeconomic and demographic patterning of family uptake of a paediatric electronic patient portal innovation

Solebo, Ameenat Lola; Horvat-Gitsels, Lisanne; Twomey, Christine; Wagner, Siegfried Karl; Rahi, Jugnoo S; (2024) Socioeconomic and demographic patterning of family uptake of a paediatric electronic patient portal innovation. PLOS Digital Health , 3 (10) , Article e0000496. 10.1371/journal.pdig.0000496. Green open access

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Abstract

Patient portals allowing access to electronic health care records and services can inform and empower but may widen existing sociodemographic inequities. We aimed to describe associations between activation of a paediatric patient portal and patient race/ethnicity, socioeconomic status and markers of previous engagement with health care. A retrospective single site cross-sectional study was undertaken to examine patient portal adoption amongst families of children receiving care for chronic or complex disorders within the United Kingdom. Descriptive and multivariable regression analysis was undertaken to describe associations between predictors (Race/Ethnicity, age, socio-economic deprivation status based on family residence, and previous non-attendance to outpatient consultations) and outcome. A sample of 3687 children, representative of the diverse ‘real world’ patient population, was identified. Of these 37% (1364) were from a White British background, 71% (2631) had English as the primary family spoken language (PSL), 14% (532) lived in areas of high deprivation, and 17% (643) had high (>33%) rates of non-attendance. The families of 73% (2682) had activated the portal. In adjusted analyses, English as a PSL (adjusted odds ratio [aOR] 1.58, 95% confidence interval 1.29–1.95) and multi-morbidity (aOR 1.26, 1.22–1.30) was positively associated with portal activation, whilst families from British Black African backgrounds (aOR 0.68, 0.50–0.93), and those with high rates of non-attendance (aOR 0.48, 0.40–0.58) were less likely to use the portal. Family race/ethnicity and previous low engagement with health care services are potentially key drivers of widening inequity in access to health care following the implementation of patient portals, a digital health innovation intended to inform and empower. Health care providers should be aware that innovative human-driven engagement approaches, targeted towards previously underserved communities, are needed to ensure equitable access to high quality patient-centred care

Type: Article
Title: Socioeconomic and demographic patterning of family uptake of a paediatric electronic patient portal innovation
Location: United States
Open access status: An open access version is available from UCL Discovery
DOI: 10.1371/journal.pdig.0000496
Publisher version: https://doi.org/10.1371/journal.pdig.0000496
Language: English
Additional information: © 2024 Solebo et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. https://creativecommons.org/licenses/by/4.0/
UCL classification: UCL
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health
UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Population Health Sciences > UCL GOS Institute of Child Health > Population, Policy and Practice Dept
URI: https://discovery-pp.ucl.ac.uk/id/eprint/10198192
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