Tamuyeye, Ingrid; (2024) “Dementia isn’t a badge of honour in any culture”: A Phenomenological Exploration of the Disclosure Experiences of Black Africans Living with Dementia. Doctoral thesis (D.Clin.Psy), UCL (University College London).

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Abstract

Despite the increasing population diversity in Europe, minority ethnic representation in dementia research remains low. Alongside underrepresentation in research is the tendency to homogenise minority ethnic populations. Little is known about what research exists for specific ethnic groups. The present paper aimed to systematically map findings from the question: “what research exists on the experiences of Black populations living with dementia in Europe?” Scoping review methodology guided by the Joanna Briggs Institute (JBI) was used. Systematic searches were completed on six electronic databases: OVID (Embase, Medline, PsycINFO), Web of Science, CINAHL and OpenDissertation. A total of 7068 studies were identified from electronic databases and a further five were identified from other sources. After titles and abstracts were screened for eligibility, 213 full text papers were read, with 16 meeting the criteria to be included in the final review. Overall, the scoping review mapped a range of studies that explored the experiences of Black populations living with dementia in Europe. Interest in this topic area increased over the past decade, however, the breadth of the inclusion criteria allowed for a range of studies with varying depth on these experiences to be identified and included. The findings may be reflective of the ongoing challenge of underrepresentation of Black populations in dementia research.

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