Gallee, Jeanne;
Cartwright, Jade;
Henry, Maya L;
Mooney, Aimee;
Stark, Brielle C;
Volkmer, Anna;
Nakano, Connie;
... Crane, Paul K; + view all
(2024)
Study protocol for the Functional Communication Checklist for people living with primary progressive aphasia.
PLoS ONE
, 19
(9)
, Article e0301652. 10.1371/journal.pone.0301652.
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Abstract
This study protocol describes the development of the first instrument of functional communication for people living with primary progressive aphasia (PPA), with future applications to other progressive conditions, with expert validation, item-level reliability analyses, input from partners in research, and outcomes. Progressive conditions like PPA require monitoring, and as such, re-assessment. Re-assessment poses the high risk of being burdensome, destructive, and of little use to the patient. As such, there is a significant need to establish a validated and reliable measure that (1) poses minimal patient burden and (2) captures communication ability in a strengths-based manner for both clinical and research purposes. A strengths-based approach to assessment is widely recognized as the optimal way to promote patient autonomy, minimize harm, and implement functional treatment protocols and strategies. To date, there are no strengths-based assessment tools that were developed for people living with PPA nor ways to efficiently document functional communication performance. This study protocol outlines our work to address this gap in clinical practice and research.
| Type: | Article |
|---|---|
| Title: | Study protocol for the Functional Communication Checklist for people living with primary progressive aphasia |
| Location: | United States |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1371/journal.pone.0301652 |
| Publisher version: | http://dx.doi.org/10.1371/journal.pone.0301652 |
| Language: | English |
| Additional information: | Copyright: © 2024 Gallée et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited. |
| Keywords: | Science & Technology, Multidisciplinary Sciences, Science & Technology - Other Topics, PERSON-CENTERED CARE, DEMENTIA |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences > Language and Cognition |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10198984 |
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