Paulauskaite, Laura;
(2024)
The development of a Core Outcome Set for evaluating the impact of Relationships and Sex Education with students with intellectual disability.
Doctoral thesis (Ph.D), UCL (University College London).
Preview |
Text
Paulauskaite_10201521_Thesis.pdf Download (8MB) | Preview |
Abstract
People with intellectual disability have limited knowledge and skills regarding relationships, sexuality, and experience poor sexual health. Despite this, very little is known about how to deliver Relationships and Sex Education (RSE) effectively to this vulnerable population, how to measure the impact of its delivery in schools, and what stakeholders perceive as important outcomes. To address these issues, this PhD project aimed to develop a stakeholder consensus–based Core Outcome Set (COS) of RSE for and with students with intellectual disability aged 5-25 years. This was a two-stage mixed methods project. The first stage involved a systematic review of RSE outcomes reported in the international literature and qualitative exploration with students with intellectual disability, their parents, teachers, researchers, and policy makers on meaningful RSE outcomes. The second stage used findings from stage one in a Delphi survey with adult stakeholders to develop consensus on the most important outcomes included in the COS. A total of 171 participants (N=19 students and N=152 adults) took part in this project. Outcomes included in the COS of RSE for students with intellectual disability in primary and secondary education related to: the human body and development; emotions and feelings; healthy relationships and associated social skills; keeping safe; consent; self-esteem; and human rights. Outcomes related to sex and sexuality were identified for inclusion in secondary education only. Stakeholders justified their selection of outcomes based on the unique needs and difficulties of this group of students. RSE delivery, the physical environment, and adults in students’ lives were perceived as important factors impacting outcome attainment by students. The findings provide a significant first step to assist the implementation, delivery, evaluation, and sustainability of RSE for students with intellectual disability. Key audiences are teachers, researchers, policy makers, and decision makers.
| Type: | Thesis (Doctoral) |
|---|---|
| Qualification: | Ph.D |
| Title: | The development of a Core Outcome Set for evaluating the impact of Relationships and Sex Education with students with intellectual disability |
| Open access status: | An open access version is available from UCL Discovery |
| Language: | English |
| Additional information: | Copyright © The Author 2024. Original content in this thesis is licensed under the terms of the Creative Commons Attribution-NonCommercial 4.0 International (CC BY-NC 4.0) Licence (https://creativecommons.org/licenses/by-nc/4.0/). Any third-party copyright material present remains the property of its respective owner(s) and is licensed under its existing terms. Access may initially be restricted at the author’s request. |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Education UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education UCL > Provost and Vice Provost Offices > School of Education > UCL Institute of Education > IOE - Social Research Institute |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10201521 |
Archive Staff Only
 |
View Item |
