Marchant, NL;
Hossain, E;
Chen, S;
Kabra, G;
Ahmad, L;
Fraser, I;
Cezair-Phillip, L;
... Cox, AL; + view all
(2025)
A multiperspective investigation of the underrepresentation of minoritized ethnic participants in dementia research and proposed strategies to improve inclusive recruitment practices.
Alzheimer's & Dementia
, 21
(4)
, Article e70129. 10.1002/alz.70129.
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Abstract
INTRODUCTION: Minoritized ethnic populations are underrepresented in dementia research despite having differing risk and prognosis profiles. We sought to gain multiperspective insights about why minoritized ethnic groups are underrepresented in dementia research. METHODS: Qualitative data were collected from focus groups with individuals from minoritized ethnic backgrounds in the UK (n = 13) and open-ended survey responses from international dementia researchers (n = 54). Facilitators and barriers to the inclusion of minoritized ethnic populations were examined using the COM-B model of behavior. RESULTS: Community member barriers included lacking knowledge about dementia and research opportunities, language, stigma, and medical/institutional racism. Facilitators included using varied recruitment strategies, culturally appropriate language, communal research, and salient outcomes. Researcher barriers included lacking skills, knowledge, materials, time, and funding to sustainably engage with minoritized ethnic communities. Facilitators included culturally sensitive, community-centered approaches in diverse research groups. DISCUSSION: Our study contributes multiperspective insights about the underrepresentation of minoritized ethnic populations in dementia research and proposes strategies to improve inclusive research practices. Highlights: Minoritized ethnic communities are underrepresented in dementia research. Community members want varied, culturally tailored recruitment strategies and communal research with salient outcomes. Researchers describe lacking skills, time, and funding for sustainable engagement. Targeted recruitment campaigns and inclusive research programs are recommended.
| Type: | Article |
|---|---|
| Title: | A multiperspective investigation of the underrepresentation of minoritized ethnic participants in dementia research and proposed strategies to improve inclusive recruitment practices |
| Location: | United States |
| Open access status: | An open access version is available from UCL Discovery |
| DOI: | 10.1002/alz.70129 |
| Publisher version: | https://doi.org/10.1002/alz.70129 |
| Language: | English |
| Additional information: | © 2025 The Author(s). Alzheimer's & Dementia published by Wiley Periodicals LLC on behalf of Alzheimer's Association. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. |
| Keywords: | Alzheimer's disease, diversity, ethnic minorities, ethnicity, race, underrepresented, underserved, Humans, Dementia, Patient Selection, Focus Groups, Female, Male, Ethnicity, Qualitative Research, United Kingdom, Surveys and Questionnaires, Biomedical Research |
| UCL classification: | UCL UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Div of Psychology and Lang Sciences > UCL Interaction Centre UCL > Provost and Vice Provost Offices > School of Life and Medical Sciences > Faculty of Brain Sciences > Division of Psychiatry > Mental Health of Older People |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/10207463 |
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