Knowles, RL;
Olafsdottir, F;
(2013)
Data: Initial Clinical Referral Standards after Newborn Screening for Congenital Hypothyroidism: Final Report of the UK Newborn Screening Programme Centre Expert Working Group and Systematic Evidence Review 2010-2011.
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Abstract
The UK NHS National Screening Programme Centre asked a multidisciplinary Expert Working Group to review and revise the exiting 'Initial Clinical Referral Standards after Newborn Screening for Congenital Hypothyroidism'. These comprise the screening programme standards for diagnosis and management of babies in whom congenital hypothyroidism (CHT) is suspected after newborn bloodspot screening. This report includes a systematic evidence review and account of the proceedings of the working group in key areas: screening test performance, referral pathways, diagnostic investigations, treatment and communication with parents. After public consultation, the recommendations were adopted as policy. This final report provides an evidence base for reviewing newborn screening for CHT in other populations and outlines a transparent consensus-based process for agreeing changes to screening standards and policy.
| Type: | UNSPECIFIED |
|---|---|
| Title: | Data: Initial Clinical Referral Standards after Newborn Screening for Congenital Hypothyroidism: Final Report of the UK Newborn Screening Programme Centre Expert Working Group and Systematic Evidence Review 2010-2011. |
| Open access status: | An open access version is available from UCL Discovery |
| Publisher version: | http://discovery.ucl.ac.uk/1385570/ |
| Additional information: | This dataset (report) is deposited under Creative Commons Licence Zero (CC0). The person who associated a work with this deed has dedicated the work to the public domain by waiving all of his or her rights to the work worldwide under copyright law, including all related and neighboring rights, to the extent allowed by law. You can copy, modify, distribute and perform the work, even for commercial purposes, all without asking permission. |
| Keywords: | Congenital hypothyroidism, newborn bloodspot, screening policy, systematic review, expert working group, clinical standards |
| UCL classification: | |
| URI: | https://discovery-pp.ucl.ac.uk/id/eprint/1393012 |
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